Family Experiences
Learn from other families, in their own words, what their journey has been like after a diagnosis. Their stories not only give us valuable insight into how they manage conditions, but also reaffirm that none of us are alone. You can also visit the Baby's First Test Youtube channel for family stories and guides to support your family through the newborn screening process. Do you have a newborn screening story you would like to share?
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An Opportunity To Fight
Kiomara Gonzalez tells her family's story with Adrenoleukodystrophy. Her brother's life would ultimately save her son and nephew's lives almost 25 years later.
Advocacy, Child Living with a Condition
Do you have a newborn screening story you would like to share? Let us know!
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Find more information about a specific condition or state
