Family Experiences
Learn from other families, in their own words, what their journey has been like after a diagnosis. Their stories not only give us valuable insight into how they manage conditions, but also reaffirm that none of us are alone. You can also visit the Baby's First Test Youtube channel for family stories and guides to support your family through the newborn screening process. Do you have a newborn screening story you would like to share?
Ginny tells the story of her daughter's diagnosis with Medium-chain acyl-CoA dehydrogenase deficiency (MCADD). A simple heel prick saved her daughter's life.
Kay Kelly discusses her experience learning of her son's diagnosis with MCAD and learning about what that means.
Do you have a newborn screening story you would like to share? Let us know!
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